Saturday, August 25, 2012

Sorry :( I'm a crappy blogger!!!

Well, I'm officially admitting that I suck at staying up to date on this. I really wish I was more committed to making time to update here. But, I will do my best and that's the best I can do, right?

Well a lot has happened since Hunter's palate surgery and there are a few things from that time I wanted to touch base on real quick: It took awhile for Hunter to actually take formula. It was really concerning to me, but I just kept trying. There was some packing (gauze stitched into the roof of his mouth) that was removed the next morning, and after it was taken out he started to eat much better. He had problems with the right side nasal stent starting to come out just shortly after arriving home. It fell out about two weeks later, so the doc removed the other one. We got one that needs to be taped in every night. It is rather difficult. I don't believe they were made very "user friendly" as the "tabs" are very smooth and just slide right out of the tape. But it's a work in progress and we're finding new and creative ways of trying to keep it in.

On to more recent news: Hunter is beginning to take his first steps. He can travel on foot for short distances between two points. He recently turned ONE last saturday. He has been doing SO well. He has begun to point at things and say "whas dat?" He is a very happy, healthy baby.

Pictures:

This was the day after his Palate Surgery

Still a bit groggy, but ready to get moving!

Trying to find ways to get those arm restraints off!

Changed into some clean clothes and ready to GO!!!

Believe it or not, That's a SMILE!!!


He kept getting upset because the IV only let him go so far!

 
This was the night we got home from the hospital, all he wanted to do was feed himself, so I put socks
on his hands, and cut the syringe on his "bottle" down so he could do it himself!!

This was on his 1st birthday!



Wednesday, May 16, 2012

Palate Repair/ Nasal Stents

Well, It's been a long time, I know, but, better late than never. We are currently on night number 2 of our hospital stay for Hunter's palate repair surgery. Everything went well. He is doing great. We arrived at the hospital at 11:30am Tuesday May 15th. Hunter went into surgery at 1:30. At 4:30pm we got him back. He was absolutley miserable. He was hurting and bleeding (not badly, just occational drops from his nose and drooling blood from the corner of his mouth) and there was nothing I could do to help him. I tried to hold him but he kept ramming his face into my shoulder. So even trying to comfort him, I was hurting him. I felt as helpless as he looked. He slept pretty good the first night, all things considered. He would wake up crying, I would pat his back or chest and he would fall back asleep. Sometimes he would get pain meds. He had been taking pedialyte so today we needed to get him to drink some formula. At first it was not going too well. However, later in the evening, we got him to take a significant amount of formula, and some pedialyte too. Hopefully, tomorrow morning he will be off the IV fluids. We are hoping to be heading home tomorrow afternoon!!!

Made this video for Hunter while I sit and watch him sleep: